What more is there to say? There is this, I guess…over and above the pain, the worst thing is the isolation. The loneliness. And the days…the months, even the years, they steal from your life.
Please feel free to share your best coping techniques, should you have any!
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I can’t even imagine. I wish I could help
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Susan, your quiet sympathy helps more than all of the eloquent words in the dictionary! Really. I just posted because I couldn’t bear the isolation any longer. Thanks for being there my friend. xo
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Barbara I used to have them really bad…I actually had severe migraines about 2 years ago now. The only thing that helped was being on predisone and I did it because having a migraine everyday, for a year, while they figured out why was debilitaing…they finally blamed it on TMJ and so I went into Boston to Tufts Dental and have acupuncture treatments for 6 weeks. I never had another migraine for over a year. Ocasionally now I might get one but I just try to relax and recognize what it is and usually it only last for a day. I also heard today on the news that they are very close to a treatment for it…so that’s good news. If you haven’t tried acupuncture, you should. It’s just another tool. Feel better soon.
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Cheryl, thanks for sharing your story and also for the tip. I have tried acupuncture, actually, while being seen at the Pain Clinic at the University of Minnesota several years ago. I had five or six sessions in hopes that it would help my fibromyalgia and migraines and unfortunately it didn’t work for me at all.
Until this year I was getting Botox treatments for my migraines which made a substantial difference–but this year our insurance is charging a $1200 copay for the Botox before they will even ship it to my doctor. So I’ve gone without my treatments and I’m back to having migraines almost every day. It’s just unbearable.
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