Found this on Facebook and I think every #spoonie out there can relate!
I am changing my blog’s name to fit the direction I want to take it, and my writing. There will still be plenty of photography, and if anyone should be interested in making a purchase, just click on “Gingerfancy Photography” above the blog header. To read more about why I am changing the name, and how it fits with the past history of the blog, please keep reading. Also refer to the pinned post at the top of the blog, the quote by Frederich Buechner.
Welcome! I’m Barbara and one thing I want to make clear straight away is that I am determined to live a full, generous, and creative life, one filled with love and laughter, despite chronic pain and disability. This is a good time to plug in one of my favorite quotes, by Joseph Campbell:
We must be willing to let go of the life we planned so as to have the life that is waiting for us.
Almost a year ago today, I received my Master of Arts in Theology from St. Catherine University in St. Paul, Minnesota. Actually, to be precise, my degree is a Master of Arts in Theology with a Concentration in Spirituality and a Certificate in Pastoral Theology. It took me six years to get that darn degree, thanks to fibromyalgia, bouts of chronic migraine, neck surgery after a car accident, and a quite nasty depression relapse.
Several things sustained me during this time: My husband’s unfailing support; the help and support of the incredible staff and faculty at St. Kate’s; and my belief that I was called, called by God, to pastoral care as a chaplain. I’d worked as a chaplain at the V.A. one summer in 1997 and for part of the previous summer in Oncology and General Medical-Surgical at a hospital in St. Paul. I loved it, loved it, even on the toughest, most exhausting days.
My fibromyalgia kept getting worse in my twenties and forced me to drop out of graduate school and give up on my dream of becoming a chaplain. But by my late thirties, new medications were definitely easing the fibromyalgia pain and I remember telling my mom, before she died, that I was planning to go back and get my M.A., and she was so pleased!
And so I did. But in the end my pain defeats me again..not just fibromyalgia, but myofascial pain syndrome, multiple problems in my cervical spine, chronic migraines (yes, my Botox shots help, but I still get about ten a month). I can’t even volunteer, because I don’t know whether or not I’ll be well enough on any given day to appear when I say I will.
I’m angry. And frustrated. I’m not sorry I got my degree, because I love theology, and the knowledge and skills I gained, nothing–not even fibromyalgia–can take away from me. But I want so badly to use my degree to make a difference in the world, to help others to feel God’s love and mercy. It is so painful to mourn the loss of a dream…and to attempt to discern what God has in mind to take its place.