Great list. I think I can handle it. http://themighty.com/2015/12/11-things-people-with-chronic-illnesses-need-to-do/
via 11 Things People With Chronic Illnesses Need to DO — fabwithfibro
Hey fibro friends, I found this on a terrific fibro blog I discovered today, called “Fab with Fibro” (which is what we all want to be, right?); the link is from The Mighty, one of my all-time favorite chronic illness (physical and mental) websites. They have a marvelous newsletter I highly recommend.
Anyway, I’ve been struggling with giving up my long-time dream of being a chaplain. Lots of tears, anger, envy toward the entire world of healthy people who can take any job they want without needing to think twice about health limitations…in other words, loads of grief with a big dose of self-pity mixed in. So when I read this list by The Mighty, it felt as though it was written specifically for me. So I thought I’d share this, with many thanks to fabwithfibro, for those of you who are coming bang up against fibro and other health limitations too.
Floss and have a lot of sex is the takeaway from this one (very excellent article, actually)
Well, it looks as though I am being dragged back into the blogosphere despite a monster migraine, lured by my friend Liz over at Random Thoughts of a Lutheran Geek, who is running a “Two Truths and a Lie Blog Carnival” this weekend, darn her. It’s based upon the childhood game where you tell three truths about yourself, except that one, of course, is a lie, and everyone else has to guess which one the lie is. We usually played it at slumber parties and, truth be told, I was never very good at it, because I always blushed (the curse of the Irish for you) and giggled when I told my lie. At least here I have the advantage of not being seen!
So, here are my three, um, truths:
1 I thought about becoming an Episcopalian priest.
2. I was once engaged to the son of a millionaire.
3. I was once interviewed on MPR.
So go to the comments section and make your guesses! And then play along on your own blog, link up and hop around the blogs to get to know each other better. We will reveal the correct answers on our original posts on Monday February 28th so stop back to see if you were right!
Note: I revealed my correct answers in my comments section by mistake. You will find that I like to be different. Or difficult, depending upon your interpretation! And I was late besides–oops!
- The Eucharist and the Hunger of the World, Monika K. Hellwig
- Jesus of Nazareth, King of the Jews, Paula Fredriksen
- The Misunderstood Jew: The Church and the Scandal of the Jewish Jesus, Amy-Jill Levine
- Fortress Introduction to The Gospels, Mark Allan Powell
- Social Science Commentary on the Synoptic Gospels, Bruce J. Malina and Richard Rohrbach
- John, the Maverick Gospel, Robert Kysar
- Written that you May Believe: Encountering Jesus in the Fourth Gospel, Sandra M. Schneiders, IHM
- The Middle Ages, Morris Bishop
- Models of the Church, Avery Dulles, SJ
- The Sacred Pipe, Joseph Brown
- A New Christian Paradigm: The Making of Post-Protestant Christianity, Ben M. Carter
- Jesus and the Quest for Meaning, Thomas H. West
- The Church Unfinished: Ecclesiology Through the Centuries, Bernard K. Prusak
- Salt: A World History, Mark Kurlansky
- Cod: A Biography of the Fish that Changed the World, Mark Kurlansky
- Jesus as a Figure in History: How Modern Historians View the Man from Galilee, Mark Kurlansky
- Paul–A Jew on the Margins, Calvin J. Roetzel
- The Spirituality of Paul, Thomas H. Tobin
- Navigating Paul: An Introduction to Key Theological Concepts, Jouette M. Bassler
- Angela’s Ashes, Frank McCourt
- The Hollow Crown: A History of Britain in the Late Middle Ages, Miri Rubin
- Anam Cara: A Book of Celtic Wisdom, John O’Donohue
- The Lost: A Search for Six of Six Million, Daniel Mendelsohn
- Whitethorn Woods, Maeve Binchy
- Saxons, Vikings, and Celts: The Genetic Roots of Britain & Ireland, Bryan Sykes
- The Shadow of the Wind, Carlos Ruiz Zafon
- The Rule of Four, Ian Caldwell and Dustin Thomason
- The Children of Henry VIII, Alison Weir
- On Hitler’s Mountain: Overcoming the Legacy of a Nazi Childhood, Irmgard A. Hunt
- My Life with the Saints, James Martin, SJ
- The Monster of Florence: A True Story, Douglas Preston with Mario Spezi
- Sailing the Wine-Dark Sea: Why the Greeks Matter, Thomas Cahill
- How the Irish Saved Civilization, Thomas Cahill
- Christianity Rediscovered, Vincent J. Donovan
- Doors to the Sacred: A Historical Introduction to Sacraments in the Catholic Church, Joseph Martos
- The Catholic Myth: The Behavior and Beliefs of American Catholics, Andrew Greeley
- The Amber Room: The Fate of the World’s Greatest Lost Treasure, Catherine Scott-Clark and Adrian Levy
- No Place Like Home, Mary Higgins Clark
- The Great Influenza: The Epic Story of the Deadliest Plague in History, John Barry
- The Last Knight: The Twilight of the Middles Ages and the Birth of the Modern Era, Norman Cantor
- Soldier from the War Returning: The Greatest Generation’s Troubled Homecoming from World War II, Thomas Childers
- The Basque History of the World, Mark Kurlansky
- Catherine the Great: Love, Sex, and Power, Virginia Rounding
- Elizabeth and Mary: Cousins, Rivals, and Queens, Jane Dunn
- Devil’s Brood, Sharon Kay Penman
- Falls the Shadow: A Novel, Sharon Kay Penman
- Queen Emma and the Vikings: Power, Love and Greed in 11th Century England, Harriet O’Brien
- Time and Chance, Sharon Kay Penman
- Dragon’s Lair, Sharon Kay Penman
- The Queen’s Man: A Medieval Mystery, Sharon Kay Penman
- When Christ and his Saints Slept, Sharon Kay Penman
- The Reckoning, Sharon Kay Penman
- The Sunne in Splendor: A Novel of Richard III, Sharon Kay Penman
- The Year 1000: What Life was Like at the Turn of the First Millennium, Robert Lacey and Danny Danziger
- Here be Dragons, Sharon Kay Penman
- Walking on a Rolling Deck: Life on the Ark, Kathy Berken
- The Civilization of the Middle Ages, Norman Cantor
- Mistress of the Monarchy: The Life of Katherine Swynford, Duchess of Lancaster, Alison Weir
- Lucia: A Venetian Life in the Age of Napoleon, Andrea D. Robilant
- A Venetian Affair: A True Tale of Forbidden Love in the 18th Century, Andrea D. Robilant
- The Gift of the Jews: How a Tribe of Desert Nomads Changed the Way Everyone Thinks and Feels, Thomas Cahill
- Restoration London: From Poverty to Pets, from Medicine to Magic, from Slang to Sex, from Wallpaper to Women’s Rights, Liza Picard
- The Seville Communion, Arturo Perez-Oerveto
- In the Wake of the Plague: The Black Death and the World it Made, Norman Cantor
- The Lady Elizabeth: A Novel, Alison Weir
- Faith and Treason: The Story of the Gunpowder Plot, Antonia Fraser
- Blue Iris: Poems and Essays, Mary Oliver
This year’s list is dedicated to some of my favorite fellow bookworms: Aunts Barb and Jo, Emilie, Liz P., Liz H., Roxane S., and Kristine.
But most of all, this list is dedicated to my darling sister-in-law Fran, who shares my intense love of books and often subsidizes my Barnes and Noble habit, and to my mom, who instilled in me a love of the power of words and the magic of language, as well as an intense curiosity about the world around me.
(I originally posted this on Facebook, but I wanted something semi-fun to post here today, so I thought I’d use this.)
1.I never liked poetry when I studied it in English class, but now I love reading it on my own. In fact, I’m becoming a poetry addict.
2. I closed my mom’s eyes after she died. For some reason, this was–and still is–very important to me.
3. I was the last person in my class to learn to read, and 10 years later aced the PSAT verbal section. Perseverance does pay off!
4. I procrastinate terribly–not because I’m lazy, but because I’m afraid I’ll screw everything up. Talk about self-fulfilling prophecies!
5. I think it is a disgrace that Pope John XXIII has not yet been canonized.
6. I took French in high school and college, and Spanish in college, and remember absolutely nothing of either. (edit 2012–I’m doing Rosetta Stone to try and relearn it all!)
7. When I was very little, I wanted to be both an astronaut and a ballerina. Simultaneously.
8. Yes, I really am a redhead. I’m partly Irish, after all.
9. I was engaged (to a millionaire’s son, yet) before I met George and called it off when I realized I’d rather be alone by myself than alone with somebody else. Oh, am I ever glad I waited!
10. I’ve always wanted to be a writer, in addition to whatever else I do with my life.
11.I began a search for my birth mother last year. I haven’t heard anything yet. (edit 2012–She is found, and we are very close!)
12. I feel a little disloyal to my mom for doing this, even though she always supported the idea and even offered to pay for it.
13. I make a mean homemade marinara sauce, with lots of onion and garlic.
14.I used to do lots of drawing with charcoal and pastels; I’d like to start doing it again, but for some reason I’m scared to. (Maybe I’m afraid I’ll, well, suck.)
15.If I could do college over again, I’d major in history or English and philosophy, instead of political science and philosophy. And I’d take four years of Latin, for fun. Yes, fun. (edit 2012–or maybe I’d just do four years of both French and Spanish!)
16. Sometimes I feel as though I am strangely invisible.
17. I never minded being an only child, until both of my parents were gone.
18. I played varsity tennis in high school, and was also in choir and yearbook.
19. I feel very connected to both of my grandmothers, although my maternal grandma died long before I was born, and my paternal grandma died when I was 16–almost 25 years ago.
20. I have ultra-sensitive skin that requires more pampering than a baby’s. Hair, too.
21. The only thing that REALLY makes my back feel better is massage and gentle yoga. And certain muscle relaxers, of course.
22. I would love to do freelance writing but have no idea how to begin.
23. One of the very best days of my life was the day I discovered that dark chocolate actually contains more antioxidants than green tea.
24.My biggest regret (aside from infertility) is that I was supposed to spend a college semester studying in London, which fell through when we couldn’t come up with the extra cash, and then later I was supposed to spend a whole week over New Year’s Eve staying in a friend’s flat in Paris, only to wind up in the ER the night before my flight with a bad case of influenza.
25. When I was 30 I had surgery to correct a crooked jaw–my scoliosis made the lower part of my face grow unevenly.(edit 2012–I actually had three surgeries to correct the kyphosis and scoliosis in my back when I was 17 and a senior in high school.)
- The Girl with the Pearl Earring, Tracy Chevalier
- Falling Angels, ibid
- Chronically Happy: Joyful Living in Spite of Chronic Illness, Lori Hartwell
- Please Understand Me: Character & Temperament Types, David Keirsey and Marilyn Bates
- Katherine, Anya Seton
- Bird by Bird: Some Instructions on Writing and Life, Anne Lamott
- Victorian London: The Life of a City, 1840-1870, Liza Picard
- Elizabeth’s London: Everyday life in Elizabethan London, ibid.
- Innocent Traitor: A Novel of Lady Jane Grey, Allison Weir
- The Lost Painting: The Quest for a Caravaggio Masterpiece, Jonathan Harr
- Thunderstruck, Erik Larson
- Isaac’s Storm: A Man, A Time, and the Deadliest Storm in History, ibid
- The Warrior Queens, Antonia Fraser
- Mary, Queen of Scots, ibid
- Love and Louis XIV: The Women in the Life of the Sun King, ibid
- Journey From the Land of No, Roya Hakakian
- Divine Secrets of the Ya-Ya Sisterhood, Rebecca Wells
- Little Altars Everywhere, ibid
- Leaving a Trace: On Keeping a Journal, Alexandria Johnson
- The Hidden Writer: Diaries and the Creative Life, ibid
- Wisdom of the Celtic Saints, Edward Sellner
- Open the Door: A Journey to the True Self, Joyce Rupp
- Praying by Hand: Rediscovering the Rosary as a Way of Prayer, Basil Pennington, O.C.S.O.
- The Wounded Healer: Ministry in Contemporary Society, Henri J.M. Nouwen
- Compassion: A Reflection on the Christian Life, Nouwen, et al
- Called to Question: A Spiritual Memoir, Joan Chittister
- The Gift of Years: Growing Older Gracefully, ibid
- There is a Season, ibid
- The Story of Ruth: Twelve Moments in Every Woman’s Life, ibid
- The Dark Night of the Soul: A Psychiatrist Explores the Connection Between Darkness and Inner Growth, Gerald May, M.D.
- Kitchen Table Wisdom: Stories That Heal, Rachel Naomi Remen, M.D.
- How Much is Enough? Hungering for God in an Affluent Culture, Arthur Simon
- The Challenge and Spirituality of Catholic Social Teaching, Marvin L. Krier Mich
- Cloud of Witnesses, Jim Wallis and Joyce Hollyday
- Joan: The Mysterious Life of the Heretic Who Became a Saint, Donald Spoto.
- The Bible: A Biography, Karen Armstrong
- How Firm a Foundation: Leaders of the Liturgical Movement, Robert L. Tuzik, ed.
- Prayers of the Women Mystics, Rhonda De Sola
- Woman, Why Do You Weep? Spirituality for Survivors of Childhood Sexual Abuse, Sandra M. Flaherty
- Touching the Holy: Ordinariness, Self-Esteem, and Friendship, Robert J. Wicks
- Thirsty for God: A Brief History of Christian Spirituality, Bradley P. Holt
- Pilgrim’s Almanac: Reflections for Every Day, Edward Hays
- In Cold Blood, Truman Capote
- Hitler’s Willing Executioner’s: Ordinary Germans and the Holocaust, Daniel Jonah Goldhagen
- Wait ‘Til Next Year, Doris Kearns Goodwin
- Light a Penny Candle, Maeve Binchy
- Tara Road, ibid
- Quentin’s, ibid
- Scarlet Feather, ibid
- Silver Wedding, ibid
- Evening Class, ibid
- The Glass Lake, ibid
- Firefly Summer, ibid
- Year of Wonders: A Novel of the Plague, Geraldine Brooks
- People of the Book: A Novel, ibid
- The Chronic Illness Experience: Embracing the Imperfect Life, Cheri Register
- Dim Sum, Bagels, and Grits: A Multicultural Adoption, Myra Alperson
- Lincoln: A Novel, Gore Vidal
- Attaching in Adoption: Practical Tools for Today’s Parents, Deborah D. Gray
- Life’s Companion: Journal Writing as a Spiritual Quest, Christina Baldwin
- Words in a French Life: Lessons in Love and Language From the South of France, Kristin Espinasse
- Coastliners: A Novel, Joanne Harris
- Five Quarters of the Orange, ibid
- Chocolat, ibid
- A Vision of Light: A Margaret of Ashbury Novel, Judith Merkle Riley
- In Pursuit of the Green Lion: A Margaret of Ashbury Novel, ibid
- The Water Devil: A Margaret of Ashbury Novel, ibid
- The Birth of Venus: A Novel, Sarah Dinanat
- Murder in the Rue De Paradis, Cara Black
- Murder in Belleville, ibid
- Murder in the Marais, ibid
- Murder on the Ile Saint-Louis, ibid
- Murder in Clichy, ibid
- Murder in Montmartre, ibid
- Entre Nous: A Woman’s Guide to Finding Her Inner French Girl, Debra Oliver
- Hardball: How Politics is Played by One Who Knows the Game, Christopher Matthews
- Lean Forward Into Your Life, Mary Anne Rademacher
- The Historian, Elizabeth Kostova
- Good Living With Fibromyalgia, Arthritis Foundation
All while typing this list I kept thinking of two of my favorite readers: Emilie, and my mom. “Oh, I’ve got to tell Emilie about this one,” I’d think, only to remember…I’ve had more time to get used to my mom’s death, but I still can’t help wanting to call her on the phone to tell her every time I discover an especially intriguing, complex, mystery story.
But still. Today, this is how I honor them, and the legacy they’ve left me, a legacy filled with love and appreciation for the power and mystery of language. And I’m grateful, too, for the many friends with whom I still share a mutual love of books, of delight in a cleverly turned phrase, in that magical feeling of discovering something new and traveling on a magic carpet–all thanks to our common love of the written (and spoken!) word.
And mom, it’s taken me many years, but I finally–well, mostly–forgive you for all those horrible puns.
(For an example of another friend who loves words, too, check out Liz’s beautifully written recent post.)
Oops! I made out my resolution list several weeks ago and then completely forgot to post it. I’ve never made birthday resolutions before, but hitting a milestone birthday has inspired me to take stock of where I am and where I want to go. So here goes!
- Keep up with gratitude journal somedays
- Complete adoption application, home study, and dossier still trying to come up with application fee
- Yoga occasionally
- Physical therapy exercises at least 5 days per week ummm…
- Volunteer for Barack Obama (GOTV effort) nope–migraines kept me in bed
- Begin spiritual direction done
- Paint living room, hallway next spring
- Send in grad school application for Master’s in Theology Program by December 1 make that December 30
- Find financial aid for grad school
- Celebrate 40th birthday in style done!!!
- Lose Prednisone weight by Christmas almost
- Apply for spiritual direction certificate program changed to pastoral ministry certificate program
- Cardio at least 5 days per week
- Strength training, 2 days per week
- Get mammogram done
- Organize photos
- Organize mom and grandma’s letters
- Obedience lessons for Fiona
- Eat at least 5 fruits and vegetables daily HA!!
- Check into infertility support group found online adoption support group
- Check into fibromyalgia support group
- Organize study
- Do The Artist’s Way
- Date night with George once a week
- Work on improving my Spanish, especially conversational maybe French, instead
- Send birthday cards ON TIME not even close 😦
- Update blog more often better
- Journal every day, even if for only a few minutes somdays
- Organize mom’s things, finally
- Explore ways to finance adoption looking at foster-adoption now
- Send five things for publication
- Read To Kill a Mockingbird, The Great Gatsby, The Sun Also Rises, Catcher in the Rye, Anna Karenina, and The House of Spirits
- Learn to knit
- Knit prayer shawl
- Become commissioned Eucharistic Minister
- Check into Basilica Befriender ministry yes
- Reconnect with college friends doing
- Keep to a regular sleep schedule getting much better
- Organize week using The Life Organizer by Jennifer Louden will probably never do
- Watch more comedies too many Law & Order reruns, still